Debbie has written a few guest blogs for us before, which were insightful and moving and this one is no different - have your tissues at the ready!
"Sign it, Say it, Sing it
Aged one, Matthew could sing.
He couldn’t really sing the words, but could hold a tune
beautifully. His favourite song was The
Wheels on the Bus and he'd hum away tunefully to himself while spinning the
wheels of his toy cars. After bath time
we would always sing Twinkle Twinkle and Baa Baa Black Sheep while settling him
down to sleep. He could join in with the
tunes and it was a joy to hear.
Aged two, Matthew stopped singing.
Sometime after Matthew's second birthday, in amongst the
turmoil of the endless waiting for appointments, the repeated answering of the
same questions, the sleepless nights and the desperate hope that it was all a
mistake, I noticed that he was singing less and less. In time Matthew had stopped singing
altogether.
I am a music lover. I
guess most people are. Music is, for me,
the background of life, constantly there in its many, many forms. And Matthew loves it too. He has always responded well to music, from
classical to dance to nursery rhymes and most things in between. But before Matthew was three he had learned,
and then seemingly forgotten how to sing.
This was one more blow, a soft but meaningful blow at a time when they
were raining down.
Song provides one of the best and most enjoyable ways to
learn. If we know the tune, the words
stick too. We remember and
understand. So song is, of course,
extensively used by parents, speech therapists, play workers, nursery staff, school staff and
everyone involved in helping our children to learn.
And although no longer
singing, Matthew never stopped responding to song. Songs became an integral part of the
strategies that we learned to enable and encourage Matthew to communicate. Reward an achievement with a favourite
song. Sing a song after Matthew has
co-operated with getting dressed.
Encourage him to use PECS (Picture Exchange Communication System) to request the
songs he loves.
Anyone who knows Matthew will know that he enjoys food at least
as much as he enjoys music, so of course food was, and remains, a huge
motivator for him, and we have utilised his love of food in exactly the same
way. But that’s another story...
One of the excellent strategies given to us by speech therapy
was to sing a favourite song and stop before the last word to encourage Matthew
to fill in the blank. He began to
communicate his desire for the word to be sung by eye contact, gesture or even
vocalisation. Communication in any form
is wonderful. At some point along the
way, this ceased to be a strategy. It
became the natural way to interact, always pausing, always withholding
something to give as a reward for communication. And in turn, Matthew would reward us with
fantastic eye contact, his own particular gesture, vocalisation and even, on
joyful occasions, the word. But never
the tune.
Matthew’s lack of singing caused me a niggling pain over the
years. Never overwhelming, but always
there. He used to sing so well, perhaps
one day he would sing again. I have
learned over the years to always hope, never expect. And so it was with singing.
From the age of three, Matthew was using PECS as his main
form of communication. He was also
exposed to Signalong, which is a very simple sign language. Signalong is used by professionals working
with children with additional needs here West Lothian. It reinforces the spoken word and children
who struggle to communicate verbally can often pick it up readily.
Aged five, Matthew was making certain gestures and these turned
out to be the actions to songs.
Aged seven, Matthew’s repertoire of signs suddenly expanded
and he could soon do the actions to many songs.
Signalong became Matthew’s preferred method of communication.
I attended Signalong classes in order to keep up. I was often describing gestures Matthew had
made in his home-school diary to find out what he had been requesting. But he
didn’t stop at requesting – he also began signing to point things out, to tell
me things. Now, when I paused during songs, Matthew would sign the next
word.
Aged eight Matthew’s speech began to develop.
I believe that signing was a significant factor in Matthew
beginning to speak, as it really showed him the power of communication. He still uses signing along with his speech
and if I can’t understand the word he is saying, I can usually understand his
gesture. As Matthew’s spoken vocabulary
expanded, he began to say the next word when I paused during his favourite
songs. He could request a song he wanted
to hear verbally. But he still didn’t
sing the tune.
Aged nine, Matthew is singing again.
I do not know how he learned to sing again. But gradually, signing and speaking the words
has become singing the song. He is
always in tune and so I always know what song he is singing. I can sing along him to help him to learn the
words. He sings away to himself all the
time and his repertoire is expanding rapidly.
And I cannot describe the joy I feel every time I hear
Matthew sing. It is the most beautiful
sound I have ever heard, and well worth waiting seven years for. The best things are always worth the wait."
